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UNDER SIEGE – Epilepsy in the Open depicts Tom's individual social, economic, and medical challenges while also portraying Epilepsy’s nationwide and worldwide social, economic and medical realities.

Mythology

“Fear, misunderstanding and the resulting social stigma and discrimination surrounding epilepsy often force people with this disorder "into the shadows.” The social effects may vary from country to country and culture to culture, but it is clear that all over the world the social consequences of epilepsy are often more difficult to overcome than the seizures themselves.” ©[1]

When a person’s “electrical system” falters and they have a “short-circuit” (seizure) in public, they have lost control of their public image. Who in the public, besides family, wants to spend time around that type of person? I use that example to explain the main reason why many of us with epilepsy don’t even breathe to others that we have the affliction. Yes, even today, once it’s known that you have epilepsy, it is entirely possible that you may suffer avoidance, unemployment, prejudice, and terribly low self-esteem.


[1] World Health Organization, “Epilepsy: social consequences and economic aspects”, Revised February 2001, 28 July 2006 ©

10 Truths About Epilepsy (Epilepsy #7) © 2003-2010 Epilepsy.com. All rights reserved.


“Problems cannot be solved at the same level of awareness that created them.”

Albert Einstein


“The first step toward change is awareness. The second step is acceptance.”

Nathaniel Branden